tag:blogger.com,1999:blog-30206473.post9060294907769832122..comments2023-10-23T11:24:13.532-04:00Comments on Diabetes Update: It's Official: I'm Not An Influential BloggerJennyhttp://www.blogger.com/profile/17384082448952856117noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-30206473.post-39230769966364476282009-08-12T03:50:52.364-04:002009-08-12T03:50:52.364-04:00Jenny, keep up you high standards and dont let em ...Jenny, keep up you high standards and dont let em get you down. Thanx to you and Dr. Bernstein, I have round the clock normal bloodsugars, Type 1. I have respect for all who want to help other Diabetics with information to control their lives and blood sugars. I have the most respect for bloggers, like you, who get it right.Andrebocohttps://www.blogger.com/profile/10397879487399886462noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-85007518844847712762009-08-04T14:22:24.035-04:002009-08-04T14:22:24.035-04:00Bernard,
I am constantly hearing from people who ...Bernard,<br /><br />I am constantly hearing from people who are begging for info about where they can find an accurate meter. It would be SO good to find one. OTOH, my insurer and many others don't reimburse for any brands save Accu-Chek and One Touch and even with their coverage the deductible is quite high.<br /><br />What really torques me is I know the insurer isn't paying $107/100. Jennyhttps://www.blogger.com/profile/17384082448952856117noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-6401546316891985702009-08-04T13:12:52.773-04:002009-08-04T13:12:52.773-04:00Jenny
I just stumbled across this post today. FWI...Jenny<br /><br />I just stumbled across this post today. FWIW, which may not be much, going to Roche made me look at their meters. So I'm experimenting with them and will post reviews. So far I'm not impressed and I will be pointing that out.<br /><br />The main reason I decided to go was because of the opportunity to meet fellow bloggers and strengthen our community. <br /><br />I do notBernardhttps://www.blogger.com/profile/14936264471078732019noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-75183932220505546872009-08-03T12:42:33.588-04:002009-08-03T12:42:33.588-04:00Goober,
Dr. Bernstein lives in the NYC area and m...Goober,<br /><br />Dr. Bernstein lives in the NYC area and may not be running into the problems that those of us in smaller rural communities are reporting with the Aviva strips. It is possible they deteriorate while being shipped. The only strips I ever had for the Aviva that appeared reliable had been FedExed from the company Those mailed by the company were defective. The two orders I got Jennyhttps://www.blogger.com/profile/17384082448952856117noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-28368646175753004292009-08-03T11:34:11.745-04:002009-08-03T11:34:11.745-04:00All I know is that Dr. Bernstein recommends this m...All I know is that Dr. Bernstein recommends this meter and it's the most accurate meter system I've used (and I've tried many different systems).<br /><br />I like your site and all, but there's some virtue in being humble. Maybe you should try it.RBhttps://www.blogger.com/profile/10683497758747043748noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-13378054956585384182009-07-30T16:15:15.733-04:002009-07-30T16:15:15.733-04:00Shottlebop,
Thanks for the support!
Someone pos...Shottlebop,<br /><br />Thanks for the support! <br /><br />Someone posted a comment on the post that follows this reporting an identical experience with Roche's customer service when reporting a way out of range reading.<br /><br />My guess is that the Aviva strips are too fragile to withstand shipping or perhaps they don't do well in small towns where they sit on the shelves for a while.Jennyhttps://www.blogger.com/profile/17384082448952856117noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-5834810181712596092009-07-30T13:52:35.135-04:002009-07-30T13:52:35.135-04:00Well, Jenny, there is a whole community of folks a...Well, Jenny, there is a whole community of folks at a couple of diabetes discussion fora who make it a habit, with newly-diagnosed folks, to point them to Blood Sugar 101 (as well as to Gretchen Becker's book, The First Year: Type 2 Diabetes, if they're type 2).<br /><br />Kudos on the proposed Code of Ethics. I hope members of the blogging community elect to adhere to it, or something ShottleBophttps://www.blogger.com/profile/17513615111921645842noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-33439106294073503502009-07-28T20:39:01.662-04:002009-07-28T20:39:01.662-04:00My Accu-Chek Aviva meter really stinks. Which mete...My Accu-Chek Aviva meter really stinks. Which meter do you or anyone recommend?PJNOIRhttps://www.blogger.com/profile/09046715378364958124noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-11432696873073358462009-07-28T18:07:16.455-04:002009-07-28T18:07:16.455-04:00Scott,
Thanks for your balanced response.
I am s...Scott,<br /><br />Thanks for your balanced response.<br /><br />I am starting to find it troubling how many participants don't seem to get that whether Roche paid for a cheap dinner or expensive dinner isn't the issue. Roche is far too sophisticated to utilize a blatant bribe. <br /><br />And, of course, I know none of us does what we do, or spends the hours that we spend at it, because Jennyhttps://www.blogger.com/profile/17384082448952856117noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-1747243455002295942009-07-28T17:17:38.208-04:002009-07-28T17:17:38.208-04:00Wow ... this is a hornet's nest of activity! ...Wow ... this is a hornet's nest of activity! I am inclined to agree with Elisabeth Snouffer's comment that Roche very smartly employed a transparent corporate PR strategy and the DOC very smartly took advantage of the opportunity as means to stand united and talk about issues important to them. Will we get answers to these questions (namely the cost of testing supplies)? Probably not, Scott Shttps://www.blogger.com/profile/03286529314567223617noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-28720027757910363852009-07-28T16:53:03.130-04:002009-07-28T16:53:03.130-04:00Just so it's crystal clear- I cannot be bought...Just so it's crystal clear- I cannot be bought, and I absolutely find it offensive that you would even suggest that any of your fellow bloggers could be. <br /><br />The wining and dining of which you speak, (and I’m lifting from Alison here,) consisted of dinner at Maggiano’s, a corporate breakfast and lunch, and airport port snacks. <br /><br />EXCEPT for me, I stayed Thursday night (due k2https://www.blogger.com/profile/04167099133092135850noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-68561885339674116442009-07-28T16:17:07.924-04:002009-07-28T16:17:07.924-04:00Company sponoured junkets are a great way to meet ...Company sponoured junkets are a great way to meet and greet the company reps and other like-minded people. What it also does is make me wonder if anything they say isn't tainted. What is funny about all this, is that the "29" either didn't know this, or just plain didn't care.The Wild Haggishttps://www.blogger.com/profile/02823398009362632345noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-49342823443364623822009-07-28T16:07:45.785-04:002009-07-28T16:07:45.785-04:00Well... I have roughly 20 years of working in Phar...Well... I have roughly 20 years of working in Pharma and specifically in global diabetes care for the likes of Novo Nordisk, Sanofi, Glaxo etc. and so on. I know very intimately what kinds of conversations go on behind the closed doors of Big Pharma marketing. <br /><br />It is really a difficult call here. And I think it is safe to say that Roche very smartly employed a transparent corporate Elizabeth Snoufferhttps://www.blogger.com/profile/14295729929548305840noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-36425991972626755242009-07-28T15:31:55.006-04:002009-07-28T15:31:55.006-04:00Wow I'm actually shock. I read your post and ...Wow I'm actually shock. I read your post and all I read is jealousy. Pure and simple jealousy!. I read some of these people's blog and I really enjoy them. They have been helpful and I have found support amongst them.<br /><br />I can't believe that you would try to belittle them like that. Imply that these good people could be bought! Please.<br /><br />This is the first time Rachelhttps://www.blogger.com/profile/06232809986949136155noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-56089990074549394542009-07-28T15:16:05.483-04:002009-07-28T15:16:05.483-04:00I was invited. I didn't go because I had day ...I was invited. I didn't go because I had day job obligations and had already made my travel plans for BlogHer. I had my own reservations about Roche's intentions, about which I plan on blogging in the next couple days.<br /><br />From all accounts, however, it was a decent meeting. I don't think anyone who went is always RAH RAH RAH - they tell it like it really is - perfection isnAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30206473.post-44648845484047950682009-07-28T14:46:27.947-04:002009-07-28T14:46:27.947-04:00Jenny: I had to come back to issue a P.S. to echo...Jenny: I had to come back to issue a P.S. to echo what Katie S just said. And while you know I value you so much as a fellow T2, and I am disappointed that you weren't considered, I do value ALL of the other bloggers who were chosen.<br /><br />Although my issues differ from T1s, and whose to say which are worse - not me - I have learned SO much from my T1 counterparts. I would never have Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30206473.post-35528126349639341722009-07-28T14:29:11.497-04:002009-07-28T14:29:11.497-04:00One more point: if you read my post as written you...One more point: if you read my post as written you will note that I did not say that Roche had succeeded in co-opting the "influential" bloggers. I cannot imagine that the Scott Strumellos of the world are going to stop pointing out truths in response to a plane ticket no matter who paid for it.<br /><br />What I said was to WATCH and see if Roche's attempt to buy influence worked. Jennyhttps://www.blogger.com/profile/17384082448952856117noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-70931668768999924982009-07-28T14:27:43.039-04:002009-07-28T14:27:43.039-04:00I really think you should have been there. Roche d...I really think you should have been there. Roche didn't say much at all. We did almost all of the talking.<br /><br />In fact, the biggest thing I got out of this is that, we as bloggers can change things. Now I may be one of the ones you think should not be there but if you have read even a HAND full of my pathetic posts, you will see I am rarely a feel good kind of guy. <br /><br />Who Georgehttps://www.blogger.com/profile/14508213573891885604noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-41317480760438344562009-07-28T14:24:04.506-04:002009-07-28T14:24:04.506-04:00You obviously did not do your "homework"...You obviously did not do your "homework". I was VERY vocal about the cost of supplies, even though it was probably the wrong setting to do it. So was Scott King and Fran Carpentier. <br /><br />As far as why I went? When am I, a social network and charity founder/president, ever going to have the opportunity to discuss serious issues with executives of the largest meter/strip Christopher Thomashttps://www.blogger.com/profile/09834459947813330582noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-77116373459863369252009-07-28T14:20:10.251-04:002009-07-28T14:20:10.251-04:00There's only one reason anyone should be readi...There's only one reason anyone should be reading my blog: because they find the information I posted on it useful. <br /><br />If the content isn't compelling, why bother with it? <br /><br />I learned a long time ago that the friends I make by holding my tongue aren't worth having. I also learned that when I call things as I see them and don't kowtow to self-appointed leaders I Jennyhttps://www.blogger.com/profile/17384082448952856117noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-73590715144830180982009-07-28T13:56:53.235-04:002009-07-28T13:56:53.235-04:00After reading this post all it does is remind me h...After reading this post all it does is remind me how bitter people can be, instead of being happy for other bloggers that there was an opportunity for people to meet with companies to try and make it better for people with diabetes, you take them down. This is not how we should be. Everyone is in this together to find a cure since I know that is all I can think about for my daughter who was Gailhttps://www.blogger.com/profile/16054073009456399963noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-68088214938172246952009-07-28T13:55:01.519-04:002009-07-28T13:55:01.519-04:00Perhaps the real test was to see the reaction of t...Perhaps the real test was to see the reaction of the rest of the community after picking out specific people to attend. After all they are in Marketing.<br /><br /><br />Jim BrooksJimhttps://www.blogger.com/profile/03530965525036763010noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-77696503501073220142009-07-28T13:48:39.064-04:002009-07-28T13:48:39.064-04:00Wow. I can see that your experience with diabetes ...Wow. I can see that your experience with diabetes has been much different than mine. I could do all the analytics I want with this disease and the main thing I've learned is 1+2 does NOT always equal 3. For a Type 3 (parent to a Type 1 Diabetic) with a TYPE A personality, that has been my biggest challenge of being my son's caretaker for 7 yrs. I've been letting all the gray unknown Zitahttps://www.blogger.com/profile/12606954023271759045noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-48359686223726936312009-07-28T12:56:24.067-04:002009-07-28T12:56:24.067-04:00Wow, all this post makes me want to do is stop rea...Wow, all this post makes me want to do is stop reading YOUR blog. In my view everyone who writes about diabetes is influential, I remember the days when there was no one. Go after Roche all you want, but lay off the people who attended the summit.Araby62 (a.k.a. Kathy)https://www.blogger.com/profile/02629706069673992324noreply@blogger.comtag:blogger.com,1999:blog-30206473.post-73227453925317259862009-07-28T12:48:46.733-04:002009-07-28T12:48:46.733-04:00I am very glad you brought to light one aspect of ...I am very glad you brought to light one aspect of this problematic conference and the issues around big pharma buying into patient-led territory. HOWEVER - I have a lot of respect for many patient bloggers who went and do not think they should be personally criticized. These bloggers, many of whom have personally helped me with my D-endeavors, truly care about their community and work hard to Unknownhttps://www.blogger.com/profile/02803563378260146374noreply@blogger.com